We can speak up louder, act faster and empower people and providers to improve, adopt and promote ubiquitous health data exchange.
First and foremost, as mentioned earlier, data quality still needs improvement.
Fortunately, I have a simple suggestion to get the ball rolling: “if you see something, say something”. Be polite about it, but not so polite you “let it pass.”
I’ve seen many well intentioned people accused of data blocking when, in reality, they are the biggest supporters of health data exchange. People make mistakes. They can forget to complete things. They may not know it is broken.
Second, to my fellow patients, take control of your health data. We are all empowered to be an advocate for our own health and to take charge of our health data. If something is not working or is wrong, ask for it to be corrected.
It is YOUR health data. Go get it. Make sure it is correct. Make sure your data makes sense to you. Challenge what doesn’t. Again, be nice, but yell when you have to. I have found more mistakes in my data then I care to admit. The more we interact with our data, the more our clinicians will appreciate how much we need it to be accurate, complete and interoperable so we can be partners in our own care.
And to the providers, be aware of data mistakes and how they can impact things now and may in the future. Missing a decimal point on a prescription can be deadly. Recording the wrong blood pressure on a hypertensive patient could be life altering. Misfiling a diagnosis could be costly.