Patient Access: Putting My Binder Back on the Shelf


I have a chronic illness. During my diagnosis process, from 2012 to 2014, I carried a four-inch binder to all my doctors’ appointments because none of the specialists I visited communicated with each other or shared records. I had to be the single source of truth for my own medical information; otherwise, tests were unnecessarily repeated and my medical bills spun out of control. When appointments concluded, I would call to request a paper copy of the visit record, pick it up from the office, and add it to my binder. An incredible amount of work was involved in creating my binder. I made sure it was easy to flip through and organized logically. I even created cover sheets to provide doctors with a brief overview of what changed in [...]